This week we found out that one of the last programs for people with disabilities is no longer open for new people. They call this program Section 29, it is a waiver program that allows state dollars and federal dollars to pay for services to people with disabilities. But mostly it was the last place parents and young people with disabilities could seek services upon graduating from High School. It is very difficult to understand these services. All through school special education services are mandated, the schools must provide for all students. But once a person reaches the age of 21 they become part of the "adult" services which are not an entitlement. It is such a shock for parents and young people.
Over the next year many changes will come and it will be critical to keep focused on supporting ALL people with developmental disabilities. I have no idea how the system will respond to the need and the lack of funding but parents and families will need lots of support. There is a lot of talk about restructuring and new models. I am most concerned that services are not only for the most serious cases but that those people for whom a little support could go a long way. Keep your eyes and ears open.
